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Sociedad Iberoamericana de Información Científica (SIIC) selects
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The increasing number of Open Access articles widens the reading offer
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While most of the selected texts belong to original articles,
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Cita:Proc Natl Acad Sci U S A 2024 Aug 6; 121 (32) : e2320603121.
Autor/es:Ebert, Jeffrey P (a) Xiong, Ruiying A (b)
institución:(a) Department of Emergency Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA 19104. (b) Penn Medicine Nudge Unit, University of Pennsylvania, Philadelphia, PA 19104.
Conflicto:Competing interests statement:While involved with this research, W.J.F., K.L.G., and W.C.E. were employed by The Progressive Corporation. As employees of the company, W.J.F., K.L.G., and W.C.E. owned stock in The Progressive Corporation. K.G.V. is part owner of a consulting company, VALHealth. F.K.W. has an intellectual property and financial interest in Diagnostic Driving, Inc. The Children’s Hospital of Philadelphia (CHOP) has...
as an institutional interest in Diagnostic Driving, Inc. Diagnostic Driving, Inc., created a virtual driving assessment system that is used in Ohio as an assessment at licensing centers and in driving schools to assess driver training programs but not used in this study. Flaura K. Winston serves as the chief scientific advisor of Diagnostic Driving, Inc. This potential conflict of interest is managed under a conflict-of-interest management plan from CHOP and the University of Pennsylvania.
Pharmacogenomics polygenic risk score: Ready or not for prime time?
Pharmacogenomics polygenic risk score: Ready or not for prime time?
Fuente:Clinical and Translational Science
Extracto:
Despite these challenges, ongoing research
and large-scale collaboration is likely to advance the field and realize the
potential of pharmacogenomic PRS.
Cita:Clin Transl Sci 2024 Aug; 17 (8) : e13893.
Autor/es:Singh, Sonal (a) Stocco, Gabriele (b)
institución:(a) Merck & Co., Inc, South San Francisco, California, USA. (b) Department of Medical, Surgical and Health Sciences, University of Trieste, Trieste, Italy.
Conflicto:Los autores declaran no tener conflictos de interés con la investigación
Expanding a Behavioral View on Digital Health Access: Drivers and Strategies to Promote Equity.
Expanding a Behavioral View on Digital Health Access: Drivers and Strategies to Promote Equity.
Fuente:Journal of Medical Internet Research
Extracto:
This paper presents a model that emphasizes using multilevel
strategies across design, delivery, dissemination, and sustainment stages to
advance digital health access and foster health equity.
Claves:behavioral medicine, digital divide, digital health, health care access, health equity, implementation, mHealth, mobile health, mobile phone
Cita:J Med Internet Res 2024 Aug 1; 26 : e51355.
Autor/es:Kepper, Maura M (a) Fowler, Lauren A (b)
institución:(a) Prevention Research Center, Washington University in St. Louis, St. Louis, MO, United States. (b) Sexuality, Health, and Gender Center, Washington University in St. Louis School of Medicine, Saint Louis, MO, United States.
How Should MLP Clinicians and Attorneys Help Veterans Secure Disability Benefits When Health Records Documentation Is Insufficient?
How Should MLP Clinicians and Attorneys Help Veterans Secure Disability Benefits When Health Records Documentation Is Insufficient?
Fuente:Ama Journal of Ethics
Extracto:
his case commentary considers unique features of medical-legal partnerships
(MLPs) in the Veterans Health Administration that may potentially mediate and
minimize ethical tensions that may arise in MLP collaborations involving
diagnosing and documenting disability.
Cita:AMA J Ethics 2024 Aug 1; 26 (8) : E616-621.
Autor/es:his case commentary considers unique features of medical-legal partnerships
(MLPs) in the Veterans Health Administration that may potentially mediate and
minimize ethical tensions that may arise in MLP collaborations involving
diagnosing and documenting disability.
institución:his case commentary considers unique features of medical-legal partnerships
(MLPs) in the Veterans Health Administration that may potentially mediate and
minimize ethical tensions that may arise in MLP collaborations involving
diagnosing and documenting disability.
[Implantable automatic defibrillators and their deactivation, a necessary conversation. Literature review].
[Implantable automatic defibrillators and their deactivation, a necessary conversation. Literature review].
Fuente:Revista Medica de Chile
Extracto:
It is necessary to address these barriers and discuss these issues with patients
to inform and educate them about the functioning of their devices, with the
ultimate goal of enabling informed and shared decision-making for patient
well-being.
Cita:Rev Med Chil 2023 Oct; 151 (10) : 1399-1405.
Autor/es:Cerda, Tomás (a) Crispino, Luciana (b)
institución:(a) Departamento de Medicina Interna, Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile. (b) Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.
An unclosed loop: Perspectives of community engagement in infectious disease clinical trials in sub-Saharan Africa.
An unclosed loop: Perspectives of community engagement in infectious disease clinical trials in sub-Saharan Africa.
Fuente:Plos One
Tipo de trabajo:Estudio clínico
Extracto:
CE role players
require intensive training to ensure ethical CE and that communities are treated
with dignity. This includes 1) using collaborative strategies involving research
and CE staff, 2) protocol-adherence that recognises CE as pertinent, 3) viewing
communities as complex and building relationships that are sustainable, and 4)
ensuring that knowledge translation is considered at a community-level. Further
research is necessary to investigate potential training programmes that integrate
these elements.
Cita:PLoS One 2024; 19 (8) : e0308128.
Autor/es:Späth, Carmen (a) Schmidt, Bey-Marrié (b)
institución:(a) School of Public Health, University of the Western Cape, Cape Town, Western Cape, South Africa. (b) Division of Social and Behavioural Sciences, University of Cape Town, Cape Town, Western Cape, South Africa.
Conflicto:Los autores declaran no tener conflictos de interés con la investigación
The relationship professional commitment and ethics with patient rights: a cross-sectional descriptive study.
The relationship professional commitment and ethics with patient rights: a cross-sectional descriptive study.
Fuente:Bmc Medical Ethics
Extracto:
The findings of the study show that the level of ethics
and professional commitment and respect for patient rights among nursing,
midwifery and emergency medicine students was good. It is hoped that the results
of this research will provide a basis for better planning for the development of
knowledge and respect for patient rights among students.
Claves:Patient right, Professional Commitment, Professional ethics
Cita:BMC Med Ethics 2024 Aug 2; 25 (1) : 85.
Autor/es:Mohammadnejad, Sara (a) Raiesifar, Afsaneh (b)
institución:(a) Instructor of Geriatric Nursing, School of Midwifery and Nursing, Ilam University of Medical Sciences, Ilam, Iran. (b) Student Of Medical Ethics, School Of Medical, Shahid Beheshti University Of Medical Sciences, Tehran, Iran.
Conflicto:The datasets of the study are available by email to the correspond author.
A case of an Angelman-syndrome caused by an intragenic duplication of UBE3A uncovered by adaptive nanopore sequencing.
A case of an Angelman-syndrome caused by an intragenic duplication of UBE3A uncovered by adaptive nanopore sequencing.
Fuente:Clinical Epigenetics
Extracto:
Our study shows the benefits of an all-in-one nanopore sequencing approach for
the diagnostics of Angelman syndrome and other imprinting disorders.
Cita:Clin Epigenetics 2024 Aug 2; 16 (1) : 101.
Autor/es:Holthöfer, Laura (a) Diederich, Stefan (b)
institución:(a) Institute for Human Genetics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany. (b) Institute for Human Genetics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany.
Conflicto:Los autores declaran no tener conflictos de interés con la investigación
Digital endpoints in clinical trials: emerging themes from a multi-stakeholder Knowledge Exchange event.
Digital endpoints in clinical trials: emerging themes from a multi-stakeholder Knowledge Exchange event.
Fuente:Trials
Tipo de trabajo:Estudio clínico
Extracto:
The event emphasised the importance of consortium building and
highlighted the critical role that collaborative, multi-disciplinary, and
cross-sector efforts play in driving innovation in research design and strategic
partnership building moving forward. This necessitates enhanced recognition by
funders to support multi-stakeholder projects with patient involvement,
standardised terminology, and the utilisation of open-source software.
Claves:Clinical trials, Digital endpoints, Digital health technology, Multi-stakeholder engagement
Cita:Trials 2024 Aug 3; 25 (1) : 521.
Autor/es:Tackney, Mia S (a) Steele, Amber (b)
institución:(a) MRC-Biostatistics Unit, University of Cambridge, Cambridge, UK. mst35@cam.ac.uk. (b) Strategic Funding Partnerships Hub (SFPH), Cambridge University Hospitals, Cambridge, UK.
Conflicto:JN received a travel grant from Aparito Ltd to attend an educational event. RAA is an employee of ICON PLC. EHD is an employee and shareholder for Aparito. WGD has received consultancy fees from Google, unrelated to this work. KBES is an employee and shareholder of AstraZeneca.
Promoting professionalism through humanities-based transformation.
Promoting professionalism through humanities-based transformation.
Fuente:Annals of Medicine
Extracto:
Professionalism programs should be vested with the authority to
implement an affirmative educational program intended to nurture and promote
medical professionalism in each medical student, resident, fellow, and attending
and utilize methods to that end employing both virtue and care ethics.
Claves:Medical professionalism, academic medical centers, hospitals, medical education, virtue
Cita:Ann Med 2024 Dec; 56 (1) : 2386039.
Autor/es:Medical professionalism, academic medical centers, hospitals, medical education, virtue
institución:Medical professionalism, academic medical centers, hospitals, medical education, virtue
Conflicto:No potential conflict of interest was reported by the author(s).
Investigation on physical restraint use in hospital: health responsibility, ethical and medical legal considerations.
Investigation on physical restraint use in hospital: health responsibility, ethical and medical legal considerations.
Fuente:La Clinica Terapeutica
Extracto:
Restraint could be a real risk for the healthcare worker,
encroaching on the issue of health liability. It is therefore important to raise
awareness among healthcare professionals and top management of the need to
structure, at company level, procedures that comply with the "Recommendations on
physical restraint" to overcome the use of restraint through the improvement of
care pathways in compliance with organizational and risk management standards.
Claves:KAP study, ethical decision making, health workers, physical restraint; professional liability
Cita:Clin Ter 2024 Jul-Aug; 175 (Suppl 2(4)) : 153-157.
Autor/es:Baldino, G (a) Messina, A (b)
institución:(a) Legal Medicine Section, Biomorf Department, Messina University. (b) Legal Medicine Section, Biomorf Department, Messina University.
Health expectations an international journal of public participation in health care and health policy
Selección SIIC: 8 Agosto, 2024
Health expectations an international journal of public participation in health care and health policy
Knowledge-based representation: Patient engagement in drug development.
Knowledge-based representation: Patient engagement in drug development.
Fuente:Health Expectations An International Journal of Public Participation in Health Care and Health Policy
Extracto:
Even
though knowledge-based representation may be understood as an attempt to downplay
the political aspects of representation in favour of its epistemic elements, the
political processes involved in patient representation in drug development cannot
be ignored. The extent to which reliance on knowledge-based representation will
contribute to democratic decision-making is likely to depend on the resources
needed to develop the types of knowledge relevant to representation work and on
how these types of knowledge are determined. PATIENT OR PUBLIC CONTRIBUTION:
Patient representatives and practitioners in the field of patient engagement
(including 13 interviewees, representatives of EUPATI and HTG developers) gave
feedback on the interpretation of the findings during a multistakeholder workshop
we organised. We also sent an interviewee an extended draft and discussed it
during an online meeting. Claudia Egher presented these findings at a PEOF
session in June 2023, which further contributed to their validation.
institución:(a) Innovation Studies, Copernicus Institute of Sustainable Development, Utrecht University, Utrecht, The Netherlands. (b) Department of Health, Ethics and Society, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands.
Conflicto:Los autores declaran no tener conflictos de interés con la investigación
Health expectations an international journal of public participation in health care and health policy
Selección SIIC: 8 Agosto, 2024
Health expectations an international journal of public participation in health care and health policy
The League: A person-centred approach to the development of social robotics for paediatric anxiety.
The League: A person-centred approach to the development of social robotics for paediatric anxiety.
Fuente:Health Expectations An International Journal of Public Participation in Health Care and Health Policy
Extracto:
There is an ethical imperative to meaningfully incorporate the voices of youth
and young adults with psychiatric conditions in the development of devices
intended to support their mental health and quality of life. PATIENT OR PUBLIC
CONTRIBUTION: Six young people and two parents with lived experiences of
paediatric anxiety participated in all stages of developing a research programme
on social robotics to support paediatric mental health in a community context.
They also provided input during the preparation of this manuscript.
Claves:anxiety, emotion regulation, paediatrics, patient engagement, person‐centred care, social behaviour, social robotics
Cita:Health Expect 2024 Feb; 27 (1) : e13981.
Autor/es:Dosso, Jill A (a) Kailley, Jaya N (b)
institución:(a) Department of Medicine, Division of Neurology, The University of British Columbia, Vancouver, British Columbia, Canada. (b) British Columbia Children & Women's Hospital, Vancouver, British Columbia, Canada.
Conflicto:Los autores declaran no tener conflictos de interés con la investigación
Safety-netting strategies for primary and emergency care: a codesign study with patients, carers and clinicians in Sweden.
Safety-netting strategies for primary and emergency care: a codesign study with patients, carers and clinicians in Sweden.
Fuente:Bmj Open
Tipo de trabajo:Guía
Extracto:
Our study highlights the collaborative nature of
safety-netting, engaging both the clinician and patient, sometimes supported by
carers, in an iterative process. Adding to previous research, our study also
emphasises the importance of anticipating postconsultation inquiries and
facilitating reconsultation.
Claves:community-based participatory research, decision making, emergency service, hospital, person-centered care, primary care, safety
Cita:BMJ Open 2024 Aug 5; 14 (8) : e089224.
Autor/es:Wannheden, Carolina (a) Hagman, Johanna (b)
institución:(a) Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden carolina.wannheden@ki.se. (b) Stockholm Health Care Services, Academic Primary Healthcare Centre, Stockholm, Sweden.
Conflicto:Los autores declaran no tener conflictos de interés con la investigación
Patients' motives and considerations on treatment decision-making for heavy menstrual bleeding: a qualitative study.
Patients' motives and considerations on treatment decision-making for heavy menstrual bleeding: a qualitative study.
Fuente:Bmc Women's Health
Extracto:
Our results show that women's
considerations and decision making strongly depend on the obtained information
and experience, the relationship with the physician, the influence of the social
environment, the pre-visit expectations/desires, the fear of treatment
complications and uncertainty of the effect of the treatment. It is a physicians
role to create a trusting and open atmosphere during consultation.
Patient-centered communication is helpful to share knowledge, and gain insights
into a patient's hopes, fears and worries.
institución:(a) Department of Obstetrics and Gynecology, Máxima Medical Center, P.O. Box: 7777, Veldhoven, MB 5500, The Netherlands. tamara.oderkerk@mmc.nl. (b) Department of Obstetrics and Gynecology MUMC+, Grow-School of Oncology and Reproduction Maastricht University, Maastricht, The Netherlands. tamara.oderkerk@mmc.nl.
Conflicto:Los autores declaran no tener conflictos de interés con la investigación
institución:(a) Department of Geriatrics, The First Affiliated Hospital, School of Medicine, Zhejiang University, Hangzhou, China; Key Laboratory of Diagnosis and Treatment of Aging and Physic-chemical Injury Diseases of Zhejiang Province, The First Affiliated Hospital, School of Medicine, Zhejiang, China. (b) Department of Geriatrics, The First Affiliated Hospital, School of Medicine, Zhejiang University, Hangzhou, China; Key Laboratory of Diagnosis and Treatment of Aging and Physic-chemical Injury Diseases of Zhejiang Province, The First Affiliated Hospital, School of Medicine, Zhejiang, China.
Conflicto:Declaration of competing interest The authors declare that they have no conflict of interest.
Global Perfusion Practice Survey: Readiness of On-Call and Emergency Operation Rooms.
Global Perfusion Practice Survey: Readiness of On-Call and Emergency Operation Rooms.
Fuente:Brazilian Journal of Cardiovascular Surgery
Extracto:
This survey sheds light on current
perfusion practices and challenges, emphasizing the importance of standardized
protocols in regards to readiness of on-call and emergency operation rooms. It
provides valuable insights for advancing perfusion safety and patient care while
contributing to the existing literature on the subject.
Claves:Anesthetists, Cardiac Surgical Procedures, Delivery of Health Care, Emergencies, Patient Care, Perfusion, Reaction Time, Sample Size
institución:(a) Perfusion Department, Heart, Vascular and Thoracic Institute, Cleveland Clinic Abu Dhabi, Abu Dhabi, United Arab Emirates. (b) Department of Cardiothoracic and Vascular Surgery, All India Institute of Medical Sciences, Rishikesh, Uttarakhand, India.
Impact and Assessment of Research Integrity Teaching
Impact and Assessment of Research Integrity Teaching
Fuente:Science and Engineering Ethics
Tipo de trabajo:Revisión
Extracto:
In
our discussion section we contextualise these results, and following this we
derive some recommendations for relevant stakeholders in RI teaching.
Claves:Assessment, Education, Ethical decision-making, Research integrity, Teaching
Cita:Sci Eng Ethics 2024 Jul 23; 30 (4) : 30.
Autor/es:Crean, Daniel (a) Gordijn, Bert (b)
institución:(a) School of Veterinary Medicine, University College Dublin, Belfield, Dublin 4, Ireland. daniel.crean@ucd.ie. (b) Conway Institute of Biomolecular and Biomedical Science, University College Dublin, Dublin, Ireland. daniel.crean@ucd.ie.
Conflicto:The authors have no relevant conflicts of interest to declare.
Nursing students' perception: Escape Room use in teaching leadership skills.
Nursing students' perception: Escape Room use in teaching leadership skills.
Fuente:Revista Brasileira de Enfermagem
Extracto:
FINAL CONSIDERATIONS: the game was an effective active
methodology in approaching the proposed content, promoting satisfaction and easy
assimilation.
Cita:Rev Bras Enferm 2024; 77 (2) : e20230414.
Autor/es:Rached, Chennyfer Dobbins Abi (a) Cruz, Emili Amani Alves da (b)
institución:(a) Universidade de São Paulo. São Paulo, São Paulo, Brazil. (b) Universidade de São Paulo. São Paulo, São Paulo, Brazil.
